The Gleason Initiative Foundation recently donated $31000 in proceeds
from Steve Gleason Classic Golf Tournament in Coeur d'Alene to the
Evergreen Chapter to bolster local support & care for people with
ALS. On hand to receive the big check on behalf of Care Services was
Jennifer Hanson, Development Director for the Eastern Region and Bill
Maxwell, Board Member. Steve was visiting the Northwest to relax (if you
call rafting the Snake River, relaxing!) with family and friends and to
visit Spokane to retire his Gonzaga Prep Jersey.
Running Ragnar Relay for a friend, and to fight ALS
Read our 2013 Arbor published last winter
Michaelle Hoffman, center, captains a relay team running in the Ragnar
Relay this weekend to raise money for Lou Gehrig’s Disease research, and
for a co-worker who was diagnosed with ALS. Seattle Times article
ExtremeTeam KXLY4 The "big reveal"
Peterson and his team of home remodelers recently completed a makeover
for Nate Moats of Hayden, Idaho, who is living with ALS. Nate himself
was a member of the team at one time. The remodel included a new
bathroom with an easy access shower.
If the video isn't working, you can access it HERE.
The ExtremeTeam KXLY4 is on Facebook where you can view a series of photos and updates throughout this meaningful home improvement project.
Anthony Owens: now embracing "the suck" *
The standard picture of a military leader is the person leading the
charge, directing the battlefield, commanding the ship, and making the
decisions. A leader is ever-present and sets the tone for his or her
unit. But a leader doesn’t have to be at that unit to have an impact.
Throughout his military career, first as an enlisted aviator in the
Navy and later as a Coast Guard judge advocate, retired Lt. Cmdr.
Anthony R. Owens always strived for the best. If it was worth doing, it
was worth giving his all. Read more about Anthony Owens on Military.com
*The title of his video is "Embrace the Suck" View it here
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Cavelero Mid High Teacher Jeff Leer, along with Cavelero staff member
Margaret Browder have both lost their spouses to ALS and teacher Timmijo
Forbes lost her brother, Mark Reiman to the disease. Before his death,
Reiman started a bike ride in Skagit Valley called the ALS Doubleday to
help bring awareness to the disease and to raise funds for research.
“I first rode six years ago with my wife Marilyn as her family had been
affected by the genetic form of the disease and had lost nine family
members to it,” Leer explained. “Five years ago my wife could not ride
as she was showing symptoms, four years ago she was the guest speaker at
the Saturday night dinner and was in the later stages of the disease..."
Leer, along with several other teachers, will be participating in this
year’s ALS Doubleday Bike Ride on July 27 and 28. He has put together a
team in honor of his wife Marilyn and they are currently raising money
at the school.
Seattle Visualize...a world without ALS Luncheon gets a mention in Nicole Brodeur's column: in the Seattle Times, April 23, 2013 (Link opens a pdf document)
"The number of people in wheelchairs, the packs of tissues on the
tables and the snapshot centerpieces served as fair warning: This
would be a heartbreaker of a lunch.
And it was; the “Visualize A World Without ALS” fundraiser for the
Evergreen Chapter of the ALS Association was tough, but hopeful."
Seattle Times Sports writer weighs in, wherein we get a mention in his column:
Remembering Lou Gehrig and the fight to cure ALS
by Larry Stone " ...Lou Gehrig was the Iron Horse, an unbelievably strong man who was
brought down by ALS but never quit
fighting. When he found out he had
the disease, he said he felt lucky, and it's not about the disease, but
the fight. That makes him a really important figure today.'' ~ Jonathan
Eig to Larry Stone at the Mariners game, following his keynote talk at
the Visualize...a world without ALS benefit Luncheon in Seattle.
Family helping Florence grad cope with Lou Gehrig’s Disease
It was Nov. 26, 2010. Her large family had gathered inside a waiting
room at the Mayo Clinic to hear from a group of physicians about her
then 20-year-old son, Jack.
He already knew what they were about to hear.
“It was like one of those scenes that you see on TV,” she
said, her eyes looking away. “You know, where they bring back the
family into that room filled with comfortable chairs and all the
specialists file in.” Read more.
Care Services Director Sonja Zimmer is interviewed by KCTS 9's Enrique Cerna in Chapter Two of the program "Connects" (Chapter one features British Columbia engineering students with inventions they hope will help patients with ALS)