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The ALS Association Evergreen Chapter

 

In the NEWS
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Steve Gleason presents a big check for
Care  Services
2014 Arbor - Annual Newsletter of The Evergreen Chapter


 

Steve Gleason, Jennifer Hanson, Bill Maxwell
The Gleason Initiative Foundation recently donated $31000 in proceeds from Steve Gleason Classic Golf Tournament in Coeur d'Alene to the Evergreen Chapter to bolster local support & care for people with ALS. On hand to receive the big check on behalf of Care Services was Jennifer Hanson, Development Director for the Eastern Region and Bill Maxwell, Board Member. Steve was visiting the Northwest to relax (if you call rafting the Snake River, relaxing!) with family and friends and to visit Spokane to retire his Gonzaga Prep Jersey.
Related:
Former New Orleans Saint Steve Gleason

inducted  into Gonzaga Prep Hall of Fame
View the KREM news video


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2014 Arbor - Annual Newsletter of The Evergreen Chapter
Running Ragnar Relay for a friend,
and to fight ALS
 
KPMG Ragnar Relay Team
Michaelle Hoffman, center, captains a relay team running in the Ragnar Relay this weekend to raise money for Lou Gehrig’s Disease research, and for a co-worker who was diagnosed with ALS.
Seattle Times article
 
In the Spotlight

Check out this story by
Christine Wickmark
Christine Wickmark

ExtremeTeam KXLY4 The "big reveal" 

   
Mark Peterson and his team of home remodelers recently completed a makeover for Nate Moats of Hayden, Idaho, who is living with ALS. Nate himself was a member of the team at one time. The remodel included a new bathroom with an easy access shower.


If the video isn't working, you can access it HERE.

The ExtremeTeam KXLY4 is on Facebook where you can view a series of photos and updates throughout this meaningful home improvement project.

 
 Got a local news item related to ALS you'd like to share? Submit news articles, photos and links to dedes@alsa-ec.org
Page updated: 12.26.13
 
Anthony Owens: now embracing "the suck" *
   

Anthony and JAG cohorts

The standard picture of a military leader is the person leading the charge, directing the battlefield, commanding the ship, and making the decisions. A leader is ever-present and sets the tone for his or her unit. But a leader doesn’t have to be at that unit to have an impact.

Throughout his military career, first as an enlisted aviator in the Navy and later as a Coast Guard judge advocate, retired Lt. Cmdr. Anthony R. Owens always strived for the best. If it was worth doing, it was worth giving his all. Read more about Anthony Owens on Military.com

*The title of his video is "Embrace the Suck" View it  here



   
Cavelero teachers riding for    

Cavelero Mid High Teacher Jeff Leer, along with Cavelero staff member Margaret Browder have both lost their spouses to ALS and teacher Timmijo Forbes lost her brother, Mark Reiman to the disease. Before his death, Reiman started a bike ride in Skagit Valley called the ALS Doubleday to help bring awareness to the disease and to raise funds for research.
“I first rode six years ago with my wife Marilyn as her family had been affected by the genetic form of the disease and had lost nine family members to it,” Leer explained. “Five years ago my wife could not ride as she was showing symptoms, four years ago she was the guest speaker at the Saturday night dinner and was in the later stages of the disease..."

Leer, along with several other teachers, will be participating in this year’s ALS Doubleday Bike Ride on July 27 and 28. He has put together a team in honor of his wife Marilyn and they are currently raising money at the school.

Read all about Cavelero Mid High's special fundraising challenge : Lake Stevens Journal.com

 

   
Seattle Visualize...a world without ALS Luncheon gets a mention in Nicole Brodeur's column: in the Seattle Times, April 23, 2013 (Link opens a pdf document)

"The number of people in wheelchairs, the packs of tissues on the tables and the snapshot centerpieces served as fair warning: This would be a heartbreaker of a lunch.

And it was; the “Visualize A World Without ALS” fundraiser for the Evergreen Chapter of the ALS Association was tough, but hopeful."

   
 
   
Seattle Times Sports writer weighs in, wherein we get a mention in his column:
   

Remembering Lou Gehrig and the fight to cure ALS

   

by Larry Stone
" ...Lou Gehrig was the Iron Horse, an unbelievably strong man who was brought down by ALS but never quit
fighting. When he found out he had the disease, he said he felt lucky, and it's not about the disease, but the fight. That makes him a really important figure today.'' ~ Jonathan Eig to Larry Stone at the Mariners game, following his keynote talk at the Visualize...a world without ALS benefit Luncheon in Seattle.

Read the whole thing

 

   
News from Montana:

Family helping Florence grad cope with Lou Gehrig’s Disease

It was Nov. 26, 2010. Her large family had gathered inside a waiting room at the Mayo Clinic to hear from a group of physicians about her then 20-year-old son, Jack.

He already knew what they were about to hear.

“It was like one of those scenes that you see on TV,” she said, her eyes looking away. “You know, where they bring back the family into that room filled with comfortable chairs and all the specialists file in.”  Read more.


   
     
 Good News for Vets
   
Veterans-vid-on-King5.jpg    
Also, view Kathy Holt, Board President,
discussing the new VA Rating System for people with ALS. 
   

Spokane Walk Posted on KXLY
Read the article

Posing for Team Photo

   
OLDER NEWS:    

Interview:

   

Care Services Director Sonja Zimmer is interviewed by KCTS 9's Enrique Cerna in Chapter Two of the program "Connects" (Chapter one features British Columbia engineering students with inventions they hope will help
patients with ALS)
Sonja Zimmer with Enrique Cerna

 

Woman with ALS completes Centennial Trail journey

School firelane dedicated to Lakewood dispatcher
who died from ALS

PUBLIC SERVICE ANNOUNCEMENTS

Our own president, Mark Chamberlin and Cindy Tewes are
featured in 4 Public Service announcements for our chapter.

Give these terrific PSA’s a listen
.

"ALS Patients Find Room for More Life in Less Time to Live it"  Seattle Post Intelligencer  May 13, 2007

"Online Plea Brings Strangers to Bedside"   Seattle Times  March 6, 2007

"A Life Without Fear"  Seattle Times  February 11, 2007

"Gregory Brooks, 48, was Positive and Tenacious"  Seattle Times  December 1, 2004

"Linda McCluskey was 'Ambassador' for Gehrig's Disease"  Seattle Times  March 18, 2004

 

 
     
     

 

 


 

 

 



 
 
 

 



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Lou Gehrig® used with permission of the Rip Van Winkle Foundation / www.LouGehrig.com