2020 Anchorage

Walking with the Wentworths

In November 2018 I got the phone call no one ever thinks that they will get. It was my Dad. It was official, after three days of stressful tests and waiting it was confirmed that he had the terminal illness ALS. My family was devastated and so was my heart. 

You do not know what life is worth until you face the fear of loosing it. I was 29 and loosing my father, my person. He was my best friend since I was in diapers. I watched over a 6 month period as the disease ravaged his body. And 6 months later, he passed on my birthday. I really can not express all the feelings that a terminal illness puts you through but it is a extremely humbling and painful disease. In the first month I saw him loose most of his motor function in his hands. Even medicine did not seem to work. Nothing took the pain away. I would not wish this disease on my worst enemy. 

Now that I have been through this experience, I feel a flame inside of me. A flame to stand up for people like my dad and families like mine. To help and support those getting the same news I did. No one should ever have to hear "there is no cure" or "2-5 years to live". 

Together, we can make a difference. We can fund raise for families who need help, research on a cure and better treatment, and much much more. Today, I ask you to join me. Join my Walk Team for the 19th Annual Walk to Defeat ALS at Seward Park in Seattle, WA. If you can not make it in person, you can still donate to my Team or be a virtual walker! Join me in supporting the memory of my Dad, Robin Wentworth, to help others with ALS. <3 

Thank you so much for your support. It means a lot to those receiving the benefits from it and to me personally. 

Our team is committed to raising money tosupport people in our community with ALS and spread awareness of the urgency tofind treatments and a cure. Please consider joining our team in the Walk toDefeat ALS® or choose a team member from the list and donate to our cause. 


Every 90minutes a person in this country is diagnosed with ALS and every 90 minutesanother person will lose their battle against this disease. ALS occursthroughout the world with no racial, ethnic, or socioeconomic boundaries. 

That’s whywe’re participating in the Walk to Defeat ALS. To bring hope. To raiseawareness. To provide resources and services to families free of charge. Tohelp unlock the mystery of ALS and find the key to treatments a cure. Will youjoin us? 


Amyotrophiclateral sclerosis (ALS) is a progressive, fatal neuromuscular disease thatslowly robs the body of its ability to walk, speak, swallow and breathe. Thelife expectancy of a person with ALS averages 2 to 5 years from the time ofdiagnosis. 

ALS canstrike anyone. Presently there is no known cause of the disease, yet it stillcosts loved ones an average of $250,000 a year to provide the care peopleliving with ALS and their families need. Join the movement to provide help andhope today!

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